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Tuesday, May 12, 2026

Feeling overwhelmed right now

This is just a quick update on my health since things are slowly but surely on the move.  I have a consultation on June 24th to discuss what type of surgery I'll need.  My nurse practitioner, my mama, my boss, and my boss's second-in-command all think I need a hysterectomy, and if that's the case then I'm all for it.  I've learned (just today, in fact) that uterine fibroids can cause breathing problems, and if they go on long enuff they can cause kidney failure.  I am indeed short of breath a lot of the time, and if I lie on my back or left side for too long my kidneys start to ache.  So learning the full extent of what fibroids can do was...frightening, to say the least.

Now!  All that is well and good, but even if I do get a hysterectomy that won't fix my hip pain or the nerve damage on the left side of my body.  I still don't know what's causing any of that, and everyone around me has said something different:

*My nurse practitioner and my gynecologist want me to see a neurologist.  Gynecologist is thinking MS.
*Mama wants me to see an endocrinologist, and I'm thinking the same thing (thyroid problems run in her side of the family).
*Then I ran into another lady today who had both ankylosing spondylitis and ulcerative colitis (both autoimmune diseases), and she said that they both did a number on her whole body.  Testing for spondylitis would involve a rheumatologist, and UC would bring a gastroenterologist into the mix.

That's too damn many specialists!!!  I'm showing a few symptoms of both MS and spondylitis, but I'm not convinced of either one being the sole cause.  But either way it looks like I've got a long way to go before I get some definitive answers.

Tam, I know Ken's facing more stents so y'all are in my thoughts and prayers!

Much love,
RagingMoon1987

3 comments:

  1. I just saw this. I vote hysterectomy. If you have no plans to ever have children, what do you need that stuff for? If you need help afterward with menopause symptoms, I've heard soy does wonders. I eat a fair amount of soy, being veg, and even more back when I menopaused, and I never even knew it was happening. Beware though, apparently too much soy can cause breast cancer. Let them test you for whatever needs tested. Find out what's causing your problems and get it fixed. Have they checked you for a pinched nerve or anything like that? I hope you get yourself straightened out. You still need to come do a tour of Xenia and the Rock and Roll Hall of Fame! Ken has his stents put in on Monday. I hope he does as well this time as he did last time. It still scares me to death.

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  2. Sorry it's taken me so long to comment on this post. I unfortunately know a lot about this stuff because of Mr. BTEG. He has a whole list of autoimmune disorders, including Crohn's, which attacks the colon. He also has a whole bunch of specialists that he has to see, but he's very committed to keeping himself as healthy as he can. My kids both also have a bunch of health issues. We all just hang on. From experience, I would suggest researching all of your symptoms and keeping track of all of them. Don't be afraid to ask questions or get second opinions. Some doctors are definitely better than others. If you find one you really like and who gets you, ask for recommendations from that person.

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    1. Will do. I unfortunately am going to need a second opinion on this hip...after this crap with my fibroids is over. That's going to take awhile yet.

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